Chronic UTI Global Support
Your Chronic UTI Charity
Coming soon
Who we are
Chronic UTI Global Support Ltd was founded in 2021 by campaigners who suffer with the disease.
Joanne Mckinlay created the Embedded/Chronic UTI Facebook group and has seen how devastating this illness is across the world.
The Directors, Joanne Mckinlay, Phoebe Allen, Laura Kurfurst and Georgiana Morar, all of whom suffer with the condition, have come together to make changes, worldwide.
Joanne Mckinlay and Phoebe Allen on
ITV News
Joanne Mckinlay's pitch to ITV News
Click to play
The mission
We are a patient advocacy movement aiming to raise awareness of Chronic Urinary Tract Infection. This is currently a poorly recognised disease that affects males, females and children globally. Urinary Tract Infections (UTI’s) are assumed to be a simple, uncomplicated condition which resolves easily with a short course of antibiotics. However for 30% of suffers (this may have increased since last publication) this becomes a chronic manifestation.
There is currently one NHS lead tertiary care clinic in the UK providing specialist treatment for sufferers. There is a lack of awareness of the condition within the wider medical community meaning that the majority of suffers are misdiagnosed with alternative urogynacological conditions. Our aim is to raise awareness of the condition so that sufferers can obtain better access to appropriate specialist treatment and to further the advancement of research into the causes and better treatments. Our ethos is to be guided only by the science and latest research into the disease and not anecdotal claims or treatment methods without strong medical evidence.